Up at 5AM: The 5AM Solutions Blog

Suspense! Consent Management in an Emergency

Posted on Wed, Jun 11, 2014 @ 06:18 PM

Imagine the worst: you’ve been shot, and your chances of survival are dismally slim. It goes without saying that when rushed to the ER, you’re unconscious. 

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Tags: EHR, electronic health records, health IT, EMR, informed consent, consent, clinical trials

Running the Obstacle Course of Consent

Posted on Tue, Dec 17, 2013 @ 06:00 AM

After working as a data scientist in melanoma research for 6 years, I’ve come to appreciate the need for biobanking specimens, especially when studying rare diseases. The team I worked with at Yale would have never been able to collect the 150 specimens and blood samples needed to produce a large scale melanoma exome resequencing study without a concerted effort from physicians, patients, and biobankers to gather enough samples.

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Tags: biobanking, consent

Two Secret Ingredients for Effective Patient Consent Management

Posted on Tue, Sep 24, 2013 @ 06:00 AM

Clinical trials require collection and management of patient Informed Consent Forms (ICF). This includes outlining parameters for which de-identified information, clinical/analytical data, and specimen collected (during and post clinical trial) would be used. 

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Tags: biobanking, biobanking software, semantics, consent, annotation

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