Up at 5AM: The 5AM Solutions Blog

A History of Henrietta Lacks and the Evolving Nature of Consent

Posted on Tue, Feb 04, 2014 @ 06:00 AM

“The Immortal Life of Henrietta Lacks” is certainly not a new book—it became a celebrated best seller almost immediately after it was published in early 2010.

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Tags: health IT, Dynamic Consent, biospecimen

3 Languages Your Biobank Can Speak - Exploring Controlled Vocabularies

Posted on Tue, Oct 29, 2013 @ 06:00 AM

Previously, we discussed the mandate for using data standards in biobanking. Here we will show how biomedical controlled vocabularies, a kind of consensus data standard, are used to improve data quality and interoperability. Data interoperability standards, eg HL7 and the the ISO 11179 Common Data Element (CDE) standard make use of controlled vocabularies.

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Tags: biobanking, biospecimen, SNOMED_CT, Vocabularies

4 Good Reasons Why Data Standards Matter to Biobanking

Posted on Tue, Oct 22, 2013 @ 06:00 AM

A Biobank refers to any organized collection of biological material that once was either part of a living organism or produced by it. While this blog post focuses on the human biospecimen repositories, the fundamental principles discussed are relevant for many if not most other biobank types. Furthermore the terms specimen, biospecimen and sample are used interchangeably.

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Tags: biobanking, biobanking software, data standards, CDMS, biospecimen

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