Up at 5AM: The 5AM Solutions Blog

Suspense! Consent Management in an Emergency

Posted on Wed, Jun 11, 2014 @ 06:18 PM

Imagine the worst: you’ve been shot, and your chances of survival are dismally slim. It goes without saying that when rushed to the ER, you’re unconscious. 

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Tags: EHR, electronic health records, health IT, EMR, informed consent, consent, clinical trials

Running the Obstacle Course of Consent

Posted on Tue, Dec 17, 2013 @ 06:00 AM

After working as a data scientist in melanoma research for 6 years, I’ve come to appreciate the need for biobanking specimens, especially when studying rare diseases. The team I worked with at Yale would have never been able to collect the 150 specimens and blood samples needed to produce a large scale melanoma exome resequencing study without a concerted effort from physicians, patients, and biobankers to gather enough samples.

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Tags: biobanking, consent

Two Secret Ingredients for Effective Patient Consent Management

Posted on Tue, Sep 24, 2013 @ 06:00 AM

Clinical trials require collection and management of patient Informed Consent Forms (ICF). This includes outlining parameters for which de-identified information, clinical/analytical data, and specimen collected (during and post clinical trial) would be used. 

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Tags: biobanking, consent, biobanking software, semantics, annotation


Diagnostic Tests on the Map of Biomedicine


Download the ebook based on our popular blog series. This free, 50+ page edition features updated, expanded posts and redesigned, easier-to-read maps. 

FREE Biobanking Ebook

Biobanking Free Ebook
Get this 29 page PDF document on how data science can be used to advance biorepositories.

 Free NGS Whitepaper

NGS White Paper for Molecular Diagnostics

Learn about the applications, opportunities and challenges in this updated free white paper. 

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