Performing research for any disease takes hard work, but it is nearly impossible to conduct ground-breaking research and advance science in an expedient manner without a solid starting point--The specimens. The raw material for most of the good work to happen in the life sciences can likely be found in ample quantities of quality-controlled and well-catalogued specimens linked to information about the person from whom they came and their health status.
Up at 5AM: The 5AM Solutions Blog
Many institutions have biorepositories spread throughout multiple research centers or medical facilities. They are often found using differing solutions within each lab such as excel, homegrown databases or LIMS tools. Given the differing data elements and formats, data may be exchanged through email, thumb drives, or pushed to a folder on a local server.